Cars, noises, & other distractions

My son is a very curious individual, he can be sleeping in his pack & play & I can vacuum around him no problem, do dishes, clean the livingroom, all the while just sleeping away. On the other hand, if I'm holding him & laugh out loud, he screams like I pinched his nose off, or if I sneak into his room to get something, it's as if he has a sixth sense.

He also loves the car, he can be fussing like mad, cryng turning himself red. I put him in his car seat & start driving, within 5 mins he is calm as a cucumber. I would like to add my mom is quite ingenious, we were out to eat & normally Bennett likes to watch the ceiling fans, there weren't any of course. He started fussing, my mom started waving her menu in front of him, that kept him totally preoccupied throughout dinner...BRILLIANT!!!

Well 1 more day & we leave for Omaha so Bennett can start his Pamidronate treatment. We are beside ourselves with excitment, I will update when we get up there on tuesday, later...Mark Stamoulis.

Quiet times

First of all I would like to say, I can't decide if I like writing this to Bennett, I may flip flop till I decide. Secondly, I love coming home from work & Bennett is sleeping, he looks so peaceful & adorable. He sleeps with his eyes partialy open, his hands tucked under his chin & breathing so you can just barley hear him. I sometimes take a chance & sit right next to his crib & watch him sleep. It almost seems too quiet, like there should be some sort of background noise, he does have his fan going, which he adores. I'll hold him under that, swaying from side to side, & he just stares at that fan.

He loves to see anything moving, when we go out to eat if there aren't ceiling fans he will start fussing after a few minutes, my mom actually found that if you wave a menu in front of him that keeps his attention. We are definately learning as we go.

Sky & I are really looking forward to our trip to Omaha, NE. Bennett is going to start his Pamidronate treatment. All my friends on Facebook say "Pam" is the best thing for patients with OI, it helps strengthen the bones & reduces the pain level. We are very happy about that, hopefully with less pain, we will have alot more quiet times.

Will post more when I know more...take care, Mark Stamoulis.

Things that make you happy.

Well Mr. Man...you have been doing better & better everyday. Your mom & I are almost able to tell what's wrong just by hearing you cry.

I have spoken with 2 of the mom's that have OI type II kids, & they have alot of interesting information. It's nice to talk to someone who understands completely what we are going through and can give us advice if we need it. I want your mom to give them a call I think it would take a lot of stress off her mind.

I saw Grandfather Sam tonite.

Well your grandfather & I finally figured out that abuelita Tere was right. We should have just used Skype from the begining. Once it was downloaded at both ends we saw each other clear as day. He was very happy to see you, & I know when Tere gets home she'll be equally thrilled. So, you found your voice last night too, you had quite a bit to say, in fact around 2am your mom thought there was a dog whining outside our window. It was you, talking to someone, or maybe practicing for when your going to backtalk when your older. You woke up around 4am screaming about something, I think it was upset tummy. I fed you at 5am, & then headed off to work. I hate leaving you when you look so cute...oh well.

Things are getting better

Hey there buddy, you slept good last night. Woke up once around 2am, you ate 5 ounces & went right back to sleep. You woke up around 830am & I fed you, but you were very fussy, I could not figure out why. Your mom came out to see you, & you stopped fussing while she was out here, & started when she went back into the room...go figure. You had a good day sleeping & eating, you don't like being held so much right now, it must be a phase. I gave you a bath tonite & you loved it. I think you like the weightless feeling. You are lying down now, hopefully for the rest of the nite. I love you buddy, good nite....dad.

A good night

Well, I went to bed around 11pm. Skylar had to nag me to death, I slept in our room for a couple of hours till I heard her giving Bennett his 1am feeding. I then switched to the nursery. It seems easier that way, to feed him I mean. I like the baby moniters for their convenience, but I don't like them at the same time.

I had trouble sleeping for whatever reason, who knows. Bennett slept straight thru till 6am or so. We are trying to feed him more formula, he did great this morning, 2 + ounces, that may not seem like alot, for him it's really good. He ate it pretty much without stopping or choking.

One of my favorite things being in his room listening to the sounds I normally take for granted. The fan going, his breathing, the rain (it's been raining the last couple of mornings). It's incredibly peacful, & quite a departure from his screaming when it comes time for him to eat his bottle.

I just finished feeding him, he went right back to sleep. I didn't give him Morphine right now. I'll wait & see, maybe the next feeding.