Sunday, November 29, 2009
My son is a very curious individual, he can be sleeping in his pack & play & I can vacuum around him no problem, do dishes, clean the livingroom, all the while just sleeping away. On the other hand, if I'm holding him & laugh out loud, he screams like I pinched his nose off, or if I sneak into his room to get something, it's as if he has a sixth sense.
He also loves the car, he can be fussing like mad, cryng turning himself red. I put him in his car seat & start driving, within 5 mins he is calm as a cucumber. I would like to add my mom is quite ingenious, we were out to eat & normally Bennett likes to watch the ceiling fans, there weren't any of course. He started fussing, my mom started waving her menu in front of him, that kept him totally preoccupied throughout dinner...BRILLIANT!!!
Well 1 more day & we leave for Omaha so Bennett can start his Pamidronate treatment. We are beside ourselves with excitment, I will update when we get up there on tuesday, later...Mark Stamoulis.
Saturday, November 28, 2009
First of all I would like to say, I can't decide if I like writing this to Bennett, I may flip flop till I decide. Secondly, I love coming home from work & Bennett is sleeping, he looks so peaceful & adorable. He sleeps with his eyes partialy open, his hands tucked under his chin & breathing so you can just barley hear him. I sometimes take a chance & sit right next to his crib & watch him sleep. It almost seems too quiet, like there should be some sort of background noise, he does have his fan going, which he adores. I'll hold him under that, swaying from side to side, & he just stares at that fan.
He loves to see anything moving, when we go out to eat if there aren't ceiling fans he will start fussing after a few minutes, my mom actually found that if you wave a menu in front of him that keeps his attention. We are definately learning as we go.
Sky & I are really looking forward to our trip to Omaha, NE. Bennett is going to start his Pamidronate treatment. All my friends on Facebook say "Pam" is the best thing for patients with OI, it helps strengthen the bones & reduces the pain level. We are very happy about that, hopefully with less pain, we will have alot more quiet times.
Will post more when I know more...take care, Mark Stamoulis.
Sunday, November 1, 2009
Well Mr. Man...you have been doing better & better everyday. Your mom & I are almost able to tell what's wrong just by hearing you cry.
I have spoken with 2 of the mom's that have OI type II kids, & they have alot of interesting information. It's nice to talk to someone who understands completely what we are going through and can give us advice if we need it. I want your mom to give them a call I think it would take a lot of stress off her mind.